tag:blogger.com,1999:blog-29160989.post5485335051600871515..comments2023-07-06T06:34:25.093-05:00Comments on Adopting the Spectrum: Sleep StudyUnknownnoreply@blogger.comBlogger5125tag:blogger.com,1999:blog-29160989.post-7165304717150061292009-02-13T09:34:00.000-05:002009-02-13T09:34:00.000-05:00Wow, what an ordeal, and what a crappy tech! To b...Wow, what an ordeal, and what a crappy tech! To be bad with kids AND give you fals information. You ought to write them a letter about her!<BR/><BR/>Glad to know you have some info and a plan of action.Patty O.https://www.blogger.com/profile/15598358666714482323noreply@blogger.comtag:blogger.com,1999:blog-29160989.post-50855067368150503682009-02-09T23:19:00.000-05:002009-02-09T23:19:00.000-05:00She is so adorable--wires, bandages, and all. I'm...She is so adorable--wires, bandages, and all. <BR/><BR/>I'm glad y'all got some info, at least it makes the night worth it.Lannyhttps://www.blogger.com/profile/11716187020760397063noreply@blogger.comtag:blogger.com,1999:blog-29160989.post-84919469404275451532009-02-09T12:34:00.000-05:002009-02-09T12:34:00.000-05:00ugh, that does sound like a nightmare. isn't it am...ugh, that does sound like a nightmare. isn't it amazing that they were able to even get results out of that? i am glad you now have confirmation that there is an issue there and that there is a plan in action to fix it. <BR/><BR/>a mom's instincts are always best. glad you didn't listen to those who said you were over reacting!Anonymoushttps://www.blogger.com/profile/00781164870994615088noreply@blogger.comtag:blogger.com,1999:blog-29160989.post-65232514085067915972009-02-06T14:17:00.000-05:002009-02-06T14:17:00.000-05:00Wow what a night you had. It makes my nights with...Wow what a night you had. It makes my nights with Joely look like a breeze. <BR/><BR/>Our son had his tonsils out last fall, but for different reasons - chronic throat infections. Surgery is never fun, but it was worth it. He feels so much better. Even he would do it again.<BR/><BR/>The pictures are precious, she is beautiful.Annahttps://www.blogger.com/profile/02101628106671433997noreply@blogger.comtag:blogger.com,1999:blog-29160989.post-38159274954249011392009-02-05T15:35:00.000-05:002009-02-05T15:35:00.000-05:00She DOES look adorable! I'm so glad you took y...She DOES look adorable! I'm so glad you took your camera. I'm glad you went ahead with the study, too. It's so hard with these kids. It's hard to know when to say "enough! enough with the testing!" We often take long breaks between Foster's tests. Since his most recent round at CHOP yielded absolutely nothing that we didn't already know (that he has mild ASD, hypotonia and a benign heart murmur) we may be done for a long stretch this time.<BR/><BR/>RE: tonsils and adenoids - I can tell you, our experience was fantastic. Foster has been stuffy since birth and has had severe sinus infections his whole life. A local ENT wanted to keep him on antibiotics and prescription-strength sudafed (sp?) year-round. I thought that sounded like a profoundly bad idea and got a second opinion. The second ENT (whom we LOVED) recommended having his tonsils & adenoids out ASAP. We did it last winter. Post-surgery, the ENT said Foster's tonsils and adenoids were the largest he had seen in a long time. I thought we would see immediate results, but we didn't. At first, I didn't think it made a difference at all. But now Foster is sleeping through the night about 80% of the time and he hasn't had a single sinus infection since the surgery. He's still a little stuffy, but I would say the surgery was a huge success for him. <BR/><BR/>I also wanted to tell you - you guys seem to be going through a lot this winter with the diagnostics. I know this is a really hard time, for both you and Hannah. But you are good parents. You're doing all of this to help Hannah have as much success as she deserves. You're doing the right thing. For some reason, I feel like you might need to hear that right now.<BR/><BR/>And you know where to find me if you need to hear that again!pixiemamahttps://www.blogger.com/profile/15343744406666443879noreply@blogger.com