For some reason Hannah has picked up the word "bummer" from somewhere (I'm not sure where) and has been using it quite frequently and in the proper context. I'm sure I've said it before since I grew up during the word's heyday, but I don't use it regularly so I'm not thinking she'd have heard it enough from me to truly understand what it means. Obviously she's heard it somewhere and often enough that she's inferred it's meaning quite adequately. Two of my favorite incidences of her using the word both happened this week. They may not sound as funny written out as they did in person, but I've got to put them on here anyway so bear with me. The first time she was pretending to leave a message on one of her phones for her friend Addie's mom. The message I heard her leave was this, "Hi Kim! How's Addie? Is she still coughing? Poor thing. That's a bummer. Bye." The second time was just yesterday. Our kitchen floor was a little wet from melting snow and therefore slippery. Our old dog, Abby, came trotting around the corner and slipped. Her back end went right out from under her and she fell to the ground. Hannah saw it happen and turned to me and said in a concerned tone of voice that was almost fake, "Aww, Abby fell. What a bummer." I had to bite my lip to keep from cracking up laughing at that one. You probably had to be there to know how funny it was. I think it was the tone of voice that did it for me.
Thursday, January 22, 2009
Sleep Wonderful Sleep
Tuesday, January 20, 2009
And the Winner Is. . . . .
Yesterday was such a good day! It started out rough, but Hannah really turned it around and we had a great day together. We both really needed that I think. We had a nice time at the library. We met Kimberly, Hannah's DT, there and we did therapy there. The youth room was packed with kids since schools were out due to Martin Luther King Day. We had planned on meeting
some friends there so that I knew there would be at least one kid there for Hannah to interact with, but it turns out we would have been fine anyway. Besides our friends we had planned to meet, we also ended up running into Hannah's gymnastics teacher and her two children who we have become good friends with. Hannah really likes Miss Heather's son Dawson who is 5. He's the protective big brother type and really likes taking care of Hannah. Heather's daughter Audrey is only a few weeks older than Hannah, but as is her nature, she really doesn't interact much at all with her. She definitely likes her in theory, talks about her all the time, but in person she'd prefer to stick with the older kids. An interesting change to this preference began happening this weekend however. Our friends that we met at the library have two children, a boy Zach who is almost 4 and a little girl, Ashley who is 18 months and not very verbal at all. Hannah really likes Zach, although he's much more physical than she can handle sometimes and often pushes her personal space boundaries. Still, the two of them typically get along pretty well. Typically Hannah enjoys babies from afar, but doesn't like their unpredictability when they are moving around and screeching and such. We went out to lunch after church with Zach, Ashley, and their mom Laura this past Sunday and Hannah spent the entire meal tickling and giggling with Ashley. I was stunned. Not only was she the one initiating the interaction, but it was with a younger child who doesn't speak at all. Normally she has no tolerance for those who can't communicate on her level which really hinders her ability to get along with her age mates. Then, yesterday at the
library Hannah was running around like a crazy woman chasing Ashley up and down the aisles of books (I know, not acceptable library behavior and normally I'd be putting a stop to it, but my little girl was choosing to interact with someone on her own, and someone younger than her no less!) and tickling her and giggling like mad. She had a blast. I was so proud of her. Very intrigued by the development and wondering if this would transfer to other younger children or even her classmates at preschool, but proud none the less. We also met another little boy Hannah's same age who has PDD-NOS (the alternative diagnosis the developmental pediatrician said she psychologist might come back with if she didn't quite agree with the doctor thought about Asperger's). I was really interested to talk with his parents and for Hannah to get to spend some time with another kid who gets it and shares some of her same challenges, but he was much less verbal than she is and was pretty hyper and this made her very anxious. I was not successful in getting her to interact with him at all. She wouldn't even say hi or look at him really. Her hands went straight into her mouth and she started gnawing away at them. After they left and Dawson and Audrey arrived, Hannah was able to recover and have a good time again. It was very interesting for me to see her get herself regulated again. It used to be that once she started getting anxious there was nothing we could do to stop it and now she can actually stop her anxiousness if we help her and even turn it around and get back on track. After the library we went out to eat with Laura, Zach, and Ashley at Chick-Fil-A. After eating the kids went into the play place. It was crazy in there- very loud and kids running everywhere. Hannah actually played a bit and went up in the
tubes and down the slide several times. Towards the end she came over to one of the benches and laid down. I thought she was just getting tired since it was close to nap time and she had had a very busy morning with lots of kids to deal with and that always wears her out, but later in the day totally out of the blue she told me that she laid on the "blue couch" at the restaurant because the boys were too loud and she needed a break. WOW! I think that's pretty impressive. She was over stimulated, but she didn't melt down. She took herself to a quieter (not by much, but still quieter) place and did what she needed to do to keep it together. Once again I was so proud of my little one. From Chick-Fil-A we headed on to her doctor's appointment to recheck her ears. She was still pulling at them and this weekend she said her ears hurt. This time there was no infection, but her ears were still filled with fluid which the doctor said is probably causing her discomfort. He doesn't want to do anything about it though until we have her sleep study which it seems like will be soon. Riley contacted me yesterday, but of course I wasn't home, to schedule her appointment and it sounds like the wait won't be months like we had thought. Her doctor thinks her enlarged adenoids are probably preventing the fluid from draining from her ears and he wants to see the results of the sleep study before he sends us off to an ENT. I just hope she doesn't end up with yet another ear infection in the mean time. Poor things had constant fluid in her ears and several infections for 3 months straight now. Thank heavens her hearing doesn't seem to be affected by it. We'll know more about that next week though since I finally got her 2 1/2 year hearing test schedule. We've done so many of them it's hard to believe that after this one we will only have to do one more unless we notice any problems down the road.
PS. Here's more pictures courtesy of Hannah! You can totally tell she's spent way too much time around photographers. Now she's staging photos and laying down and moving around in creative ways to get just the perspective she wants! I suppose that's what happens when your mommy and grandpa are amateur photo freaks and your aunt is a professional photographer. In this last photo that's her foot in the way. She's laying on her back and holding the camera up in front of her to take the picture of her My Little Pony that's she's pulled out of one of her precious lines specifically for this photo op!
Sunday, January 18, 2009
Interesting
Now, moving onto the real reason for this post. I find it interesting that most times that I find Hannah role playing of her own volition it is a reenactment of a situation that is difficult (or at the very least unpleasant) for her. For example, she puts her stuffed animals and Little People in time out and gives them reminders, she fixes food at her kitchen and then pretends to eat it or feeds it to me, she does her entire bedtime routine to put her babies and stuffed animals (and tonight me!) to bed or down for a nap, she even takes her own temperature or takes her baby doll's temperature. All of these activities are
ranked extremely low on her favorites list, but yet when she's playing on her own she chooses to think about them and recreate them. I wonder why?
Another thing I find interesting is Hannah's fixation with my hair. She's always liked playing with it and stroking it and pulling it, but her fascination with it has really ramped it up a notch recently. Right after Christmas I decided to get my hair cut. Because I was planning on making quite a drastic change (I cut off 14 inches) I prepped Hannah for it extensively. I showed her about how short it would be and we pulled my hair up to see what I might look like afterwards. I expected her to either be totally freaked out when I came home or intrigued for awhile. Thankfully she didn't freak out, but her fascination with my hair has lasted for much longer than I ever could have expected. It's been over 3 weeks now and she still comes up to me, grabs both sides of my hair and says, "I love your hair Mommy." Until I got my hair cut she'd never said anything about the way my hair looked before. She's also still
asking/stating "You got your hair cut?" and "Your hair is short?" pretty much every day. I wonder exactly what's going on in her little 2 1/2 year old mind that makes this change so captivating for her.
This past week has been a bit rocky because we've been stuck inside A LOT and I don't just mean inside like we haven't played outside. I mean inside like we didn't leave the house for 3 days straight even to go to the mailbox and get the mail because it was below zero the entire time with windchills that were even colder at around -30 degrees Fahrenheit! There's only so much of each other Hannah and I can take without other human contact and we were totally at each other's throats before the weekend rolled around. Thankfully Kyle didn't have to work this weekend and it finally warmed up to a balmy 8 degrees Fahrenheit on Saturday so we got a bit of a reprieve. Today was much better. We went to church and out to lunch with friends. Hannah even took a good nap. Here's hoping that tomorrow will be just as good. We're going to the library (we haven't been in almost 2 weeks which is unusual for us) so that should be a nice diversion.
PS. Just in case you were wondering about the choice of photos for this post, all of these pictures with the exception of the first one were taken by Hannah herself. When our camera started frizzing out on us this past fall we gave it to Hannah to play with once we got our new one. It still works, although it frequently takes blurry or split image photos. She's a photo taking machine just like her mama and takes dozens of pictures every single day! What a chip off of the old block. I'm so proud!
Sunday, January 11, 2009
Google Searches
Since adding the feedjet stat tracker on my blog I have been very interested in seeing how people find my blog. Most people without a direct link to our blog address find it by linking off of someone else's blog, but sometimes it comes up in google search results for various things. Some of the searches it is pretty obvious why our blog came up, anything pertaining to adoption for example since Adoption is the first word of the blog title, but other searches leave me scratching my head as to how on earth we managed to make our way into those results. Since I first started tracking, here are the things typed into the Google Search window (typos and all) that resulted in my blog being clicked on.
hyperlexia iq
the bads of adoption (I have no idea how we made it into that one!)
velveteen rabbit strep
sensory
body parts definition knees shoulders
adoption journey blog
dinosaur dreams
what dinosaurs adoption is (what on earth were they searching for?!?)
my baby adoption journey 2008
burning up shivering vommiting
baby delibrately bangs head
baby adoption blog
strongest antibiotic for pneumonia with prescription
gymnastics teacher ornaments
noah's dentist trip blog
should baby sit up with pneumnia
first dentist
positive of head shoulders (huh?)
hopball
baby autism extremely laid back smiles
babies room temperature pneumonia
dinosaur dreams
spontak family tree
Hannah autism Natalie
aspergers in girls news video
nurtured heart
how to dress 3 weeks baby
head circumference off the charts 18 months (this one just makes me smile even though I know why Hannah's blog comes up!)
baby disobedient 18 months
adoption blogs
Saturday, January 10, 2009
My First Bloggy Contest
I mentioned awhile back that I feel my blog needs a bit of a name change. Hannah is no longer a baby and we are no longer in the adoption process (although adoption is a life long journey) so it seems fitting that the blog no longer be called Adoption Journey and Baby Updates. I've toyed with making the title something to do with our entire family, something to do with Hannah's name (her name was a big secret when we started this blog), or something to do with our soon to be newly inducted status of special needs family. The big problem is that I don't have a creative bone in my body. I admire all the funny, inspiring, clever, or just plain neat blog titles of the many blogs I follow. Here are just a few of them: MOM- NOS, the incipient turvy, Lagniappe, Pancakes Gone Awry, Pomianowski Pandemania, Good Enough Mama, good fountain, Life with Two Busy Boys, A Quiet Life. You get the idea. They all have creative titles and I want one! Here's your homework. Come up with a fun or just plain creative title for my blog and leave it in the comments section of this post. I'll have Kyle help me choose the winner and then the winner will receive their prize, a copy of Daniel Tammet's Memoir Born on a Blue Day. If you've not read it or heard about him before, he's a British man who has Asperger's Syndrome who is also a Savant (think Rainman). His book is brilliant and a quick and easy read. He's also got a new book out called Embracing the Wide Sky (well it's been out since October, but still it's new to me since I just learned about it) that I'm dying to read. Once I pick a winner I'll post it on the blog and the winner should email me their mailing address and I'll send you out your book. I'll leave the contest open until midnight Sunday January 18th. That ought to give you plenty of time to get your creative juices flowing and name my blog! Good luck and may the best title win!
Unqualified
There are days when I feel like I've got this Mommy job wrapped up. I find brilliant solutions to impossible problems, stop tantrums in their tracks, and juggle endless numbers of tasks with a smile on my face. Then there are times when I feel hopelessly unqualified for this amazing responsibility I have been charged with. I'm an impostor struggling hard to keep my head above water and the level is rising more quickly than I can tread water. This week I feel unqualified. I think as an adoptive parent I maybe feel more pressure than some non adoptive parents to get things right. I want to somehow prove that I am indeed worthy of this amazing gift God (along with Tiffany and Mike) has blessed me with, to prove that a mistake was not made in choosing me to be Hannah's mommy. I try to do my best, I truly do. I know in my mind that's all I really can do, but still . . . . I can't stop my heart from wanting the very best for my little girl and wondering if maybe all my ignorance will Parenting Hannah is so hard. I want to raise a kind hearted, loving, and respectful little girl who loves the Lord and serves others before she thinks of herself, but I haven't a clue how to go about doing that. Hannah's an only child so I don't want her to grow up spoiled, feeling entitled, and thinking she's the center of the universe. She also has challenges to overcome that most other kids her age don't have and I don't want to create unrealistic expectations for her. There are times when these two desires of mine butt heads and I don't know which should take precedence. Throw the fact that Hannah's one smart cookie into the mix and that she already
knows how to manipulate the system and I find myself at a loss for how to handle so many situations. It is often unclear to me when a particular undesirable behavior or action is the result of normal (or not so normal as is often the case with Hannah's creative ways of getting herself into trouble) toddler disobedience or a result of something over which she truly has no control. If she's being disobedient I don't want to let it slide and allow her to get away with being rude, disrespectful, or just plain honory, but at the same time if she can't control what she's doing or the emotions she's feeling then I don't want to punish her for behavior that isn't her fault. Still, if I let her get away with too much that she does have control over then I could see her smart little brain sensing weakness and thinking she can just take control whenever she wants and that would not be a good thing. There are just so many factors to throw into the mix. With some things it's easy to know what's disobedience and what's her simply being overwhelmed. In social situations the culprit is most like sensory overload, but at home when being asked to do something that she has successfully accomplished multiple times before it can be harder to tell. To make matters worse, Kyle and I often disagree on the course of action in these cases so we are left wondering who truly is right. For example, Hannah doesn't really like brushing her teeth, but this is something we can usually at least muddle through. But the last 3 nights in a row, teeth brushing has been the scene of a battle of epic proportions ending in tears (both of us), time outs, and even a few reminders (AKA spankings) over disrespectful behaviors as a result of the tooth brushing.
Brushing her teeth has never had quite this violent of an effect on Hannah and the interesting thing is that I haven't had any problems with her brushing her teeth in the mornings this week-just at night. So, I'm left wondering if she's simply being disobedient and trying to get out of something she dislikes because she thinks she can or if there is something more going on that I don't realize and she can't control that is making teeth brushing simply unbearable for her. Because in any situation of crisis proportions (or even minor obedience infractions for that matter) there is a choice to be made in a split second about how to handle the situation, I've had to decide how to handle her meltdowns while in the midst of screams, flailing arms, and kicking feet. Each time in this particular battle I have chosen to view this as a disobedience issue and treated it as such. Kyle believes the opposite is true. Though we both have chosen our side, neither of us is fairly confident of our stance. There seems to be no reliable way of knowing for sure what's going on in this case. If there was an Idiot's Guide to Parenting your Brilliant Child Who Just Might Have Asperger's and Definitely has SPD I'd buy it in an instant no matter how much it cost. I'd skip the introduction and turn right to the chapter on How to Not Irreversibly Screw Up your Child Because of your Idiocy. Alas, no such book exists. Believe me, I've scoured Amazon looking for it! Instead I read blog after blog searching for mothers like me who are bravely going where
(I can't really say no mom has gone before since I've read way too many blogs for that to be the case) most moms have never been before and I find solace in knowing that while I have no mommy friends in person who share my struggles, these women are out there and they do understand. They share their stories and I read and laugh and cry right along with them as their children amaze, confuse, and frustrate them. I am so grateful for the Internet and all those who help me get through each day even if they never know how much they've done.
Wednesday, January 07, 2009
Doctor's Visit
I should not have worried. In the 2 1/2 hours we met with the developmental pediatrician Hannah displayed the entire range of her behaviors from the scary to the brilliant (the good, the bad, and the ugly as I like to think of it). I need not have even brought my laptop in. When the doctor came into the room Hannah was busy lining up her crayons, balancing them on end in a perfectly straight line and did not even look up to see who had come in the door (this after having literally asked me 50 + in the 15 minutes we had been waiting in the room if the new doctor was coming now!). She kept at her lining up and realigning for a few more minutes and then decided to grace us with her presence. Hannah conversed with the doctor like a mini adult discussing gymnastics, her new Little People house she got for Christmas, and her horses, but was unable to articulate (or maybe even imagine) what she might possibly do with the Little People in the house (besides line them up and set them up in different situations, but then she didn't even tell her that). Next she quickly and correctly identified the colors of all of the crayons she had lined up, as well as the rest of the crayons in her bag (why stop at just a few?). This entire time she had been sitting on a rolling chair that also swiveled and had been twisting the chair (and herself of course) from side to side in a constant motion except
for while she paused to place a crayon carefully on it's end in line. Shortly after identifying her colors Hannah twisted a little two hard in her chair and bumped the table the crayons were lined up on causing them all to fall over and some of them to roll to the floor. At this point she totally flipped out and had a major meltdown. She threw herself to the ground screaming and began trying to bang her head on the tiled floor. I won't bore you with the gory details, but suffice it to say that the doctor was able to witness a brilliant example of a typical meltdown and the head banging behavior we had been concerned about (neither of which I had ANY video of!). Hannah eventually recovered with some deep pressure bear hugs and rocking and went on to read a book to the doctor, write her name, rhyme some words, and cooperate fully in her
physical examination. Then, when it was time for the doctor and I to discuss the concerns Kyle and I have, Hannah became bored and cranky and had several typical toddler tantrums when she didn't get her way or receive the attention she wanted which was a nice contrast to the unprovoked meltdown of earlier in the appointment. She also displayed some sensory seeking hitting, avoidance of confrontation (she actually tried to run out of the room instead of look me in the eye after I had said No! to her), and chewing and biting on inappropriate objects. Though it was a LONG session and not what I would normally consider a good day by any standards, I was so grateful that the doctor was able to see so clearly what I was going to try to explain.
Eventually the doctor explained her observations and gave her recommendations. She said that first off Hannah needs to meet with a psychologist for a diagnostic assessment. She explained that in cases like Hannah she makes a joint diagnosis with the psychologist after the evaluation.
She said that in her opinion she strongly feels that Hannah will be diagnosed with Asperger's Syndrome and that we will find that she also has a VERY high IQ. The final and official diagnosis will not come until after the psych eval, but for now at least we know we aren't crazy. She also conferred that Hannah has definite sensory issues and that her sleep difficulties are not normal. Apparently her tonsils and adenoids are enlarged and could be causing some sleep apnea which could be exacerbating some of the problems Hannah already deals with. She recommended a sleep study and then a visit with an ENT specialist to determine what to do in that department. She also said that if we can't get Hannah in to see the OT that we want to do her sensory evaluation for formal diagnosis in a reasonable amount of time then we could go back to Riley and their clinic would do the sensory eval as well. So, it looks as if we will be making several more trips back and for to Indy in the coming months for specialist appointments, evaluations, and follow up appointments, but for now it just feels good to get the ball rolling.
As I drove home from the appointment and even now as I type this post, I am still processing
this all. Though we've had suspicions of Asperger's and knew that something wasn't quite right it still comes as a bit of a shock. Even though a diagnosis doesn't change any of the day to day challenges and gifts Hannah has, doesn't change who she is, it still smarts a little bit to have someone lay it out there in front of you so matter of factly like that. To say, yes your daughter does have a problem and she will most likely always struggle with it. No parent wants to hear that even if they already know it's true. Without a diagnosis there is still hope that it will all one day magically resolve itself. Then again, with a diagnosis there is hope too I am starting to realize. There is hope that she will have access to services and supports along the way that will help her to become a successful and thriving adult one day who can argue the pants off of the best trial lawyer in the country! :) I'm sure I'll go through struggles and doubts and probably some self pity as we move along this path, but for now I think I can go to bed relieved that God has my little girl tucked safe in his arms and that everything will work out according to His plan.
Tuesday, January 06, 2009
What I Wished For
You know that old saying, "Be careful what you wish for because you just might get it," Well I stated in my last post that I couldn't wait for February to get here so that we could meet with the developmental pediatrician at the Riley Clinic. Well, late yesterday afternoon we got a call from the clinic to say that there was a cancellation and would we like to come in early. Of course! Early, however, meant tomorrow! Yikes! My paperwork wasn't all filled out. I hadn't compiled a collection of videos of Hannah displaying the behaviors of concern. I didn't have any videos of her at school. AND worst of all, I had NO videos of a serious meltdown. I know, I know, I should have been compiling these all along and there should be plenty of videos if the behavior is abundant enough. . . . but you see I don't want to video Hannah doing stuff just to video tape her and I certainly can't command meltdowns on cue. Who wants to sit and tape their child having a meltdown anyway? Besides, there are much more important things to do during a meltdown like making sure she's safe, others are safe, and seeing if she might be coming out of it. So, we will be going in tomorrow sans meltdown video and with a crude assortment of videos I was able to dredge up that highlight some of the behaviors we worry about and I hope that my descriptions of the rest will be sufficient for now.
As for other updates, Hannah was being quite a stinker the other day at the dinner table and
was playing around with her food instead of eating and then shoving entire chicken nuggets in her mouth and screeching. I warned, threatened, even came close to bribing her to chew her food and not to talk with her mouth full because she could choke. And then it happened. The screeching abruptly ceased, her eyes popped wide open and her mouth moved noiselessly. My heart stopped for the briefest of seconds, but before I could even jump from my seat she turned red faced and began to cough. The nugget shot out across the table and Hannah stared at me unphased as if nothing had happened and continued her babble while I sat unable to breathe, think, or speak. Once I recovered I of course lectured her about talking with her mouth full and how she had just choked on her food and that would not have happened if she had waited to talk until she was done chewing. All the while I'm lecturing, Hannah has begun to eat finally and is repeatedly assuring me that "When I'm done with my chicken I will talk," even as she is currently chewing and talking at the same time. We battled the entire rest of the meal over this. Not once did she stop talking and chewing, nor did she stop informing me that she would talk once she was done eating! UGH!
Hannah has become really interested in coloring inside the lines lately and is quite perfectionistic about it. She will carefully move her crayon back and forth to fill in all the white space, but still lacks some of the control to be completely precise. When she moves her hand just a little too far or too fast and the color shoots outside of the lines she will say, "Uh oh, uh oh, uh oh, uh oh" over and over again until I am able to reassure her that it really is ok. This type of perfectionism seems to be everywhere these days. If she gets stuck while saying the Lord's Prayer she will become really upset after trying once or twice to get past a tricky spot and say, "I don't know the words, I don't know the words, I can't say it." It doesn't matter that no one told her to say it, that she was just reciting it on her own in her car seat. If she can't remember it then the world might just as well be ending. The same thing happens with her phone number. We hadn't
practiced it for months and then the other day she randomly decided she was going to say it and starting reciting the numbers over and over, but kept getting stuck at the same part. She eventually became so angry that she started hitting herself in the head!
Hannah has been quite interested in stoplights for the past month or so. She can be quite the little backseat driver too! It doesn't matter if the other cars ahead of us aren't moving yet, green means go and we should be going! She'd fit right in in NY City! She knows that green means go and red means stop and what the turn arrows mean. This week she asked for the first time about the yellow light. I briefly explained it to her and then she was on to another subject. Tonight we were driving home from therapy and it was already dark out. We came up a hill and there was a sign with a yellow flashing light cautioning that there was a stoplight just over the top of the hill. Hannah called to me from the backseat, "What's that yellow light mean, Mommy?" I told her it was a warning about the stoplight coming up. She said, "Does it mean slow down." I had to think about it a bit and then decided that yes it did mean slow down. So, I rephrased my answer and said that yellow lights mean slow down or warning. Then she saw a car ahead of us turn on it's turn signal. It flashed bright yellow. She asked, "What does that yellow light mean, Mommy? Does it mean slow down or warning?" She'd caught me again. "That light means that the car is going to turn right. It's called a turn signal." She still needed clarifying, "A turn signal means slow down or does it mean warning?" I said, "I guess it means both. It means warning, I'm about to turn. You should slow down so that you don't hit me." Like lightning she was on to the next question, she'd seen brake lights go on. "Do those red lights on the car mean stop?" "They tell us that that car is stopping and we might have to stop too so that we don't hit them," I said. The car then let off it's brakes and started to speed up. "Where are the car's green go lights?" she inquired. That did it, I was stumped. How can you refute such logic? If cars have red stop lights and yellow slow lights, why then DON'T they have green go lights too? She waited patiently for me to answer as I stalled trying to think of a decent response. Thankfully an interesting song came on the radio and I was saved the embarrassment of being out thunk by a toddler. Why hadn't I ever stopped to consider why cars don't have green go lights. Sometimes her ability to reason so adult like astounds me. It makes the tantrums and normal illogical moments of toddlerhood that occasionally sneak into my days seem so out of place. Can you believe she only turned 2 1/2 years old today?!? Seriously what little 2 1/2 year old girl even gives a hoot about the similarities and differences between traffic lights and vehicle lights? Only my little girl, only my little girl. I'm so proud of her. Happy Half Birthday Hannah!
Saturday, December 27, 2008
Diagnosing Girls with Aspergers
As some of you know from reading this blog, Hannah will be going to the Riley Developmental clinic in February for an appointment. What you may not know is exactly why. So many people see Hannah and think (and often say) there's no way she has any developmental delays, she's so smart. BUT from a very young age we knew that there was something different about Hannah and it wasn't just her intelligence. From before she was a year old I suspected autism based on my work in special education and therapeutic horseback riding, but of course no one really wants to believe their child has autism so I was always searching for things to prove to me that there was nothing really wrong. After all, Hannah is extremely verbal, makes eye contact, and doesn't do obvious self stimming activities like hand flapping. Still, it lingered in the back of my mind every day. At her 18 month well baby appointment Hannah was put on an autism watch list. When she hadn't made satisfactory improvement in the areas of concern by her 2 yr check-up we were referred to the early intervention agency. That's where we learned about Hannah's SPD and I pretty much put autism out of my mind, or at least I tried to until the doctor referred her to the Riley clinic. The more research I did on the Internet and through reading books I learned that although Hannah doesn't fit the typical profile I've come to expect for Asperger's Syndrome (a type of high functioning autism) she does seem to fit the profile being developed for girls' with Asperger's Syndrome. Apparently girls with Aspergers often present with different indicators than boys and so it is often left undiagnosed and therefore those girls are denied services that could significantly impact their life for the better. I came across a very interesting video done by ABC News back in January 2008 about diagnosing girls with autism. To watch the story click on the link below and then click on the corresponding link on the blog I have linked to. For some reason I can't make the direct link work.
While Hannah is much younger than the little girl in this video, so much of her reminds me of Hannah. I am so anxious for February to get here so that we can talk to the developmental pediatrician to see what her take is on our observations. Speaking of reminding me of this little girl. Here's a picture taken of Hannah at a Christmas party we attended that really captures how Hannah reacts to stressful social situations. Notice the other kids playing together while Hannah stands off to the side with her hand in her mouth looking dazed.
Blog with link to a video of diagnosing girls with aspergers syndrome
Holiday Mayhem
Christmas Day has come and gone, but we still have two more family Christmas dinners to attend. While the time spent with family and friends has been nice, I am looking forward to the season being over because of it's effect on Hannah. Every single holiday gathering we have attended-including Christmas Day at our house has caused her to become seriously over stimulated and resulted in meltdowns. All the people, changes in routines, disruptions to her sensory diet, and other folks' houses have been a recipe for disaster and have definitely limited the enjoyment we have been able to glean from our various family gatherings. It has just been too much for her (and very stressful for Kyle and I). I know there are some who would say that we are over reactive and that it's not a big deal, but it really is. Well over
an hour straight of screaming in the van on the way home after an event (Hannah is normally quite happy to either sleep or read a book or just zone out in the car) is not OK if it can be prevented. At the risk of making people angry or hurting their feelings, I think we are going to have to seriously cut back on what we attend as far as holiday gatherings go next year. I just can see absolutely no sense in putting her through that anxiety for my benefit. One thing that has been difficult this season of holiday parties is parenting while in the midst of those who for whatever reason disagree with our parenting decisions or who believe Hannah's challenges are either non existent or at the most a result of faulty parenting practices. For some reason others genuinely believe it is ok to try to override our parenting while in group situations. While their intentions may be innocent, I'm sure they genuinely believe they are right, it seems so hard for others to accept our place as competent parents who actually know a thing or two about parenting our particular child and her specific challenges. Just because the work we do behind the scenes before events is not apparent since it's done it's job and allowed Hannah to cope much more successfully than she would otherwise, does not mean that those added steps we take to maintain control and a successful visit are unnecessary. UGH! I seem to run into this all the time with well meaning friends, acquaintances, and especially preschool. If I had a dollar f
or every time someone pointed out to me that something I've mentioned is a problem for Hannah was not a problem for them with her while I was away then I would be a very rich woman. Something we've learned is that not all reactions are immediate. While Hannah might not react at the time, especially in a place where she may be uncomfortable, she will most likely fall apart later when she feels safe and can let her guard down. Apparently this is fairly common with kids with sensory problems. I see this EVERY SINGLE day she is at preschool and every time she spends the night at someone else's house. She is fine at school (she's never once had a meltdown there) or with my parents, but almost immediately upon returning to the safety of our house she finally lets go. It's like she just can't hold it in any longer. People don't see that, so they assume it doesn't exist. There are days when that makes me so angry. I get angry at the world for making me feel like I'm crazy or imagining things when I know I'm not.
Ok, enough of my soapbox. Christmas really was a very nice time for us this year. Hannah was totally into both the secular and religious aspects of the season. She loved the thought of Christmas being Jesus' birthday. She adored her Nativity and reenacting scenes from the first Christmas with it. She also really got into Santa even though I never did get around to taking her to talk to Santa. We read lots of stories about Santa and she saw him from afar at the mall. We talked about what he does and watched NORAD's Santa tracker on Christmas Eve. We made cookies and set them out with milk and carrots for Santa's reindeer before we went to bed. The first words out of her mouth when we opened her door Christmas morning were, "Are the reindeer here? Is Santa still here?" While she was very disappointed to not get to see Santa at our house, she was slightly consoled by the f
act that he left her a thank you note for the cookies and milk and with the thought that he must be very tired after working all night and he needed a vacation. As hard as we tried to prevent it from happening, Hannah (as well as Kyle and I) was spoiled rotten by the generosity of our family and friends. She got many wonderful gifts, however I am pleased to report that the biggest hit of all has been the Little People house and carnival that Santa scored at the second hand kids' store for $10! :) Even Santa's bargain shopping in this economy! She has been playing with that thing like crazy. I knew she'd like it, but I had no idea it would be quite as big of a hit as it has been.
Sunday, December 21, 2008
Christmas Events
So no one has any ideas for a contest prize that I could use to help rename this blog? Surely there are some creative people out there somewhere in the blogosphere!
We have our first two weekends of Christmas events under our belt and so far things are going pretty well. Last weekend we went to see Kayla perform in the Nutcracker and exchange gifts with Tiffany and her family. Hannah loved the Nutcracker just as I had predicted and managed to sit through the entire show just fine. She was even really good about being passed around to some people she didn't know at all and some others that she doesn't know very well. It was easy for us to see that it made her quite anxious, but there were no melt downs and she recovered
quite nicely. She even managed to open up at dinner when it was just the people she was most familiar with. I had such a nice time at dinner watching Hannah and Kayla interact. Kayla is in kindergarten and just learning how to read, write, and spell. She would write a word she knew on a napkin with a crayon and then Hannah would read it. They had a blast together. It just melted my heart. Another wonderful thing that happened during the visit was that Tiffany's dad finally started to open himself up to Hannah a bit. He's a very nice man, but has been very distant from us and Hannah because he was afraid of getting too attached to her and then us not letting them see Hannah. Since Hannah's birth we had only seen him twice (at the twins' birthday party this summer and last) and both times he showed no interest at all in interacting or spending any time with Hannah. Usually during our visits he is purposely working so that he is not around. This time was different though. He chose to go to the performance we were attending, went out to dinner afterwords with us, offered
Hannah a seat on his lap, and even bought her a snow globe at the souvenir stand during intermission. The best part though was when he referred to himself as Grandpa Charlie to Hannah. I am so happy that he is willing to let himself be a part of Hannah's life. But then, I don't know who would NOT want to be a part of her life after meeting her and getting to know her amazing personality. Those big blue eyes of hers are enough to melt just about anyone's heart!
This weekend we went to see Kyle's Dad and brother and exchange gifts with them. Kevin made an amazing lunch and afterwords we opened presents. We were all spoiled rotten, Hannah especially. Then the boys and Hannah had a huge Nerf gun fight. Hannah had a blast running around and shooting Uncle Kevin in the knees. She also loved collecting all the ammo. For dinner we headed over to my aunt's to deliver gifts to the family we adopted for Christmas. The family
seemed to like their gifts and were very appreciative. It's nice to be able to help someone out so that they can eventually help themselves.
This week we have Christmas with my mom's side of the family on Tuesday and then Christmas Day at our house. After Christmas we will have two more holiday get togethers before the whole season is done. I guess that's just what happens when you have a large and complicated family.
The weather here is freakishly cold. Today it got into the negative degrees without the windchill and we had 35 mile an hour winds! We decided to pass on church instead of trying to take Hannah out in the cold. I'm hoping that the cold lets up a bit tomorrow because we have to go out since Hannah and I both have dentist appointments. This will be Hannah's first dentist appointment and she's never been to watch any of Kyle or I's so I'm a bit nervous about how it will go since she's not overly fond of brushing her teeth to begin with. We've been reading tons of books about going to the dentist and talking through what will happen while she's there, but I still don't know if it'll be enough to keep her from freaking out. Keep your fingers crossed that it all goes well and that she doesn't bite the
hygienist or the dentist.
The word "NO!" has reared it's ugly head here at the Spontak house and it is not pretty. Hannah is saying no to pretty much everything and is rarely cooperative at all. It's gotten so out of control that we've had to institute a strict no tolerance policy for it. No more warnings, simply an automatic reminder (AKA spanking) for any utterance of the word in response to a direction. Even with that, the nasty word's grip does not seem to be loosening. We still hear it upwards of 50 times a day. Maybe even more. It's difficult to even come to terms with the magnitude of the problem it is so huge. She even says no when I know she wants to answer yes when asked a question about whether or not she wants to do something or eat a certain food. We aren't even telling her to do something. It's her choice to make and still she says no automatically. When you add that to all the other typical two year old disobedience, there are times when I think I just might pull all of my hair out by the roots.
Ok, so the dentist trip transpired before I had a chance to publish this post. Hannah handled it like a pro! I was so proud of her. Never in a million years would I even have dreamed that it would have gone this smoothly. She was fine with the electric toothbrush, the metal picks, the floss, the chair laid back, the light, and even the crazy magnifying glasses that the hygienists wear. Everyone in the office gushed over how cute she was and how great she did and she got to choose not one, but two treasures from the prize chest. She was thrilled. Shouldn't be a problem getting her to want to go back again next time.
Friday, December 12, 2008
When 2 Year Olds Dress Themselves

Tuesday, December 09, 2008
Name Change
I've been thinking about changing the name of my blog now that we are no longer in the process of adopting AND Hannah is no longer a baby. I'm not good at coming up with catchy titles (as evidenced by the current title of the blog!) so I was wondering if some of you out there with more creative juices had any ideas. Maybe I should have a contest to come up with a new title. I'm not sure how blog contests work. Is there any sort of formal etiquette or rules for this sort of thing? What on earth would be an appropriate prize (remember I'm a stay at home mommy, so I'm not made of money)? If any of you veteran bloggers out there want to help me develop a contest to rename my blog I'd be eternally grateful.
Interestingly enough, the fact that Hannah was adopted has been placed at the forefront of my mind over and over again recently as we have had to fill out and discuss medical history forms for a variety of specialists. It never ceases to take me off guard when people are shocked that we are still in contact with Hannah's birthparents and extended birthfamily. A woman (a social worker no less!) gasped today (at Hannah's meeting to begin transitioning out of the early intervention agency) when I mentioned that I could get any information I needed on the
medical history form because I would be seeing Tiffany on Sunday. She said, "do you understand how UNUSUAL that is?" I was almost angry about her uninformed comment and popped off,"Well actually it's not unusual at all anymore. Open adoptions are quite common now." I'm sure the irritation I felt showed in my voice. I wish I had been a little bit more polite in my answer, but Jeez! She's a social worker for pete's sake. She should know a bit about adoption AND she should be sure she has the facts before she makes assumptions when talking to someone living open adoption.
To update everyone on all the medical stuff we've had going on lately. Hannah's staph infection is clearing up pretty well. It thankfully was not MRSA, but is was penicillin resistant so we did have to make an antibiotic switch mid treatment. She's still digging at her ears, but since we aren't even finished with her current round of antibiotics I haven't taken her back into the doctor's office. The visit to the orthopedic specialist went well. It turns out that Hannah does indeed have arches, but her ligaments are too loose to hold them up (this is also the cause of her over pronation). We got a prescription for an insert to put in her shoes. It turns out that we were right in thinking that Hannah is more flexible than the average two year old. She had 4 of the 5 clinical indicators of hyper mobility syndrome. Basically her ligaments are so loose that they allow her joints to move past the normal ranges of motion. Watching the doctor examine Hannah, it was really interesting to learn all the things her body can do that the normal body can't do. The thing that freaked me out the most was watching her thumb be bent back all the way until it was laying flat against her wrist and her not flinching at all. I bent my thumb back as far as it would go (granted my ligaments are extra tight instead of extra loose) and was in a lot of pain with still close to two inches to go until I even touched my wrist! Today Hannah bent herself in half (the pike position for all those gymnasts and divers out
there) and then separated her feet and brought her legs on past her head until they touched the ground on either side of her head. Then she raised them back up slightly and began separating them until she was basically doing the splits while lying flat on her back. It almost made me ill to watch her. The good news is that as long as she doesn't complain of pain or start to have joint dislocations then we don't have to be worried about this at all.
Hannah has been enjoying the Christmas season thoroughly. I melt every time she mentions the word Christmas because she mispronounces it almost every time. She so rarely mispronounces anything that I have to cherish every instance of it that I can get. Instead of saying Christmas she says Crispex (as in the cereal!). Imagine how cute it is to hear, "I can see the lights of our Crispex tree in the window!" :) For me it conjures up an image of a tree made out of cereal boxes with tiny pieces of Crispex hung as the ornaments. She loves to point out Nativities when she sees them and has an eagle eye for Christmas lights. She's very excited about our family coming to visit on Christmas Day (every day she asks me if the family is coming) and to go see Tiffany (her birthmother), Chase and Kayla (Hannah's brother and sister), Uncle Robert (Tiffany's brother), and Grandma Donna (Tiffany's mom) on Sunday. Kayla is performing in the Nutcracker and Hannah is totally pumped about going to the ballet. She informed me yesterday after talking to Tiffany on the phone that she was going to dance with Kayla in the ballet! She may not make it up on stage (let's pray she doesn't anyway!), but I have no doubt that there will be much dancing going on in the audience during the performance. She also told me that she and Kayla would be wearing dresses, but that Chase was too big for a dress!! Never mind the fact that Chase is a boy, he's simply too big! Next weekend we will be delivering our gifts to the family we adopted through Family Services. I'm really looking forward to Hannah getting her first taste of what it feels like to be generous and help others in need. I think it's so hard for kids to understand
what generosity means until you they can actually see how what they did helped someone.
Hannah's newest literary obsession is spelling. The other day she brutally drilled me at the dinner table about spelling. She started off spelling her name-first and middle and then moved on to cat and dog and then to other words she can read easily, but that I did not know she knew how to spell like up, is, it, me, go, the, see, and. She spelled each word just like our local hero Sameer Mishra who won the National Spelling Bee this year. She would say the word, spell it, then say it again. Up, U-P, up. It was so cute. After exhausting the words she definitely knew how to spell, she started asking me for words to spell. I'd give her a word and then she would attempt to spell it. After she tried I'd help her get it correct. She was really quite good at it. She would analyze each word and then do her best to phonetically spell it out using letter names and letter sounds. I was quite amazed. Her scissor skills are coming along quite nicely. I think I posted about her scissor project fascination awhile back. She can operate her scissors independently and cut right where she wants to cut although she can't always stay in a straight line. Now that we've figured out the mechanics of how to use the scissors we can work on fine tuning her control. Yesterday we made paper snowflakes. She got a HUGE kick out of snipping away at the paper and then opening it up to see what she had created. They are currently hanging on our window.
Here's a kids say the darnedest things funny story for you to chuckle about. The day I took Hannah to the doctor to have her sores looked at (the ones that ended up being the staph infection) I couldn't get her into her primary doctor so I took her to the walk in urgent care clinic down the street. Given it is the season for respiratory infections and stomach bugs, the clinic waiting room was packed. When we finally saw the doctor he had to do a biopsy of one of Hannah's sores to confirm that it was staph and to rule out MRSA. When he was done (Hannah was very brave by the way and didn't cry a bit!) he put a band aid on her bottom (that's where most of her sores are) over the one he took the biopsy from. When we walked back out into the waiting
room Kyle was there waiting for us-he had stopped on his way home from work. The waiting room was even more packed now that it was past "quitting time." Hannah, excited to see her daddy and anxious to tell him about her experience, proudly and extremely loudly announced for the entire waiting room to hear, "Daddy, I have a band aid on my bottom!" Several people snickered and we got all sorts of kind smiles as we walked out. Though I might have been a bit embarrassed by her proclamation, maybe Hannah's antics managed to cheer up someone who wasn't feeling very well.
Some of the pictures I'm posting are from Thanksgiving. We spent the day at my aunt's house visiting with my mom's side of the family. Hannah was the only kid there except for my younger cousins who are in middle and high school and she lapped up all the attention. As many of you are aware, like many toddlers Hannah loves to be naked. She especially loves to be naked and running. You can guess what this will lead to in college! She might not even need the aid of alcohol to do it! Anyway, it's often a challenge keeping her clothed and Thanksgiving was no exception. My sister started snapping away as I tried to keep my little stripper from getting indecent. I failed miserably. None of these photos are posed by the way, so don't think I'm trying to create kiddie pornography or anything. Enjoy a good laugh while you observe my little streaker.
Wednesday, December 03, 2008
Thankful
I know Thanksgiving has come and gone and everyone else has done their "thankful" posts, but I'd still like to write one. I am SO thankful for my family. Hannah and Kyle are my reasons for getting up every morning. I am eternally grateful for God placing them both in my life. When I think about my life before the both of them it just seems odd. I feel as if they were always a part of me. I am thankful for a warm bed to sleep in and plenty of food to eat. I am thankful to live in a country where I can worship God without fear of persecution. I am thankful for my friends and extended family and all the fun times we are able to share together. I am thankful for Tiffany and Mike and the sacrifice they made in order for Kyle and I to become parents. I am thankful that they have both chosen to continue to be a part of our lives. I am thankful that Hannah will always know about her birthfamily and if she ever has questions she will know that she can either ask Kyle or I or just pick up the phone and call Tiffany or Mike and ask them. Most of all, I am thankful for Jesus and his amazing sacrifice of dieing on the cross for my sins so that I can live forever in Heaven with him.
Moving on to current news in the Spontak household. . . . Poor Hannah has a double ear infection AND a staph infection. Along with that she's got a cold and a horrible cough. She's miserable. I
feel so bad for her. I gave behavior boot camp (more on that in a moment) a rest today to simply cut her some slack.
Moving on to current news in the Spontak household. . . . Poor Hannah has a double ear infection AND a staph infection. Along with that she's got a cold and a horrible cough. She's miserable. I
Even though she's sick, Hannah's been doing some mighty fine reading lately. Her sight word vocabulary continues to increase and she's starting to read sentences consisting entirely of words that are sight words for her quickly enough to have some comprehension. This is a big deal. She no longer labors over every single word pausing to notice each and every word, but reads fluently from one word to the next until she reaches one that is not immediately recognizable and then attempts to sound it out. Tonight in the bathtub she was asking me to write sentences for her to read on the bathtub walls using her tub crayons! Don't get me wrong, we aren't reading chapter books here or anything, but still mighty fine reading for a two year old if I do say so myself. Here's a sampling of what she was reading tonight in the tub. I can see a cat. The dog can run. Hannah sees the sun is up. Daddy loves Hannah. We like cats and dogs. Can you see the bus? They see it. We like to go to the zoo. Do you like bees? Mommy and Daddy love me. He is up. Is it on the top? No, you can not run to the bus. Are you sensing a theme here? :) One thing that is really cool is that she's very good at using picture clues and context to figure out an unfamiliar word. For example, the other day she was reading a book she had never seen before that had two sentences per page and followed basically the same format on most pages. The first line was usually, "Can you see it?" Then the next line was something to the effect of, "I can see a ____________." (or we see a, they see a, he sees a, etc) Most of the words for what the people saw were not words Hannah is able to sound out, but she was able to figure out the mystery word using the context and the picture on each page. She read the entire book without error pointing to each and every word as she said it, even difficult words like rooster, horse, and mouse. I was so proud of her. I thought Kyle was going to have a heart attack when she picked it up and read it like a pro for him. When she finished he turned to me and said, "Does she have it memorized?"
Ok, about behavior boot camp. Lately Hannah has been VERY sassy. She says "NO!" all the time, shouts, whines, and uses a nasty tone of voice to attempt to get what she wants. I've tried a
bout everything, but hadn't really seen any results. Things got really bad over the holiday weekend after being indulged by various extended family members at Thanksgiving gatherings. I finally had enough and informed Hannah that she would no longer get warnings about speaking rudely, arguing, or saying "NO!" when told to do something. Now she is immediately put in time out without discussion or elaboration for any of those offenses. So far this shock and awe method has been working fairly well, but it's too early to say if it's a real change in behavior or if she's simply feeling out the changes.
Hannah's appointment with the orthopedic doc is Monday. I'm very anxious to go and see what they suggest. Lately her running style has become more and more "odd." For you horsey people reading, she very significantly wings out when she runs and this really slows down her speed, causes her to veer to one side, and seems to increase her tripping. Tuesday is our meeting with the special education department within the local schools to begin the transitioning process from early intervention to the public school system. I am also anxious for this meeting since I just have a feeling that it's going to be a tough road given her gifts to convince anyone that she ought to qualify for special services. I plan on taking some videos of her at school and at home to demonstrate the significance of the difference between her capabilities and what she is able to display at school to take to the developmental clinic in February, so if I need to use some of that footage to convince the folks here that there are definite issues then I will.
Hannah is seriously excited about Christmas this year, but doesn't quite get that Christmas is a holiday/event/day and not a place. Multiple times a day she asks me if we are going to Christmas today. She's still sorting out the secular and religious aspects of Christmas. Today I gave her a children's nativity set to play with. While I was opening it up she saw Jesus in the manger and correctly said, "That's baby Jesus!" Then she caught a glimpse of a donkey and asked, "Is that Jesus' reindeer?" I had to bite my lip not to laugh hysterically in her face. A lengthy conversation resulted detailing the characters in the Christmas story and differentiating them from Santa and his friends. Last year she wouldn't go near a Santa and referred to all Santa's she saw as "No-Na" AKA Noah as in Noah's ark. This year she's requested several times already to go see Santa (and his reindeer). I plan on taking her, but I'm not optimistic about the prospects of the visit being successful. Then, you never know. She does have a thing for men with facial hair! I'm really looking forward to decorating the house and picking out the tree with her this year. I just know she's going to have a blast. Now will be the time when she starts understanding and
remembering traditions and begins to form warm fuzzy (hopefully) holiday family memories. We will also be going to see the Nutcracker in a few weeks. Kayla (Hannah's birthsister) will be performing in the production and we've been invited to attend. I'm super excited because I've always wanted to see the Nutcracker and also because I think Hannah will love it. While we were on our cruise in September Hannah was enthralled by the Vegas style shows they had each night. She loved the singing and dancing and would get up and dance along. I think she'll really like the music, costumes, and dancing at the ballet. I just hope she'll be able to sit through the whole thing. I'm not sure how long it is.
The new play room is proving to be a resounding success. We spend TONS of time in there, mostly on the hammock. It's been quite helpful in calming her when she's out of sorts and an awesome way to do a little sensory pick me up as needed throughout the day. She loves to climb in and out of the hammock and to throw herself to one side so that she tips over and falls out
onto the bed. She thinks it's hilarious and we get that glorious "coo" of happiness we used to hear when she was a baby when she was in her swing or when Kyle would do the "Demon Drop" with her (hold her in a prone position over his head and pretend to drop her to the floor, slowing the speed just as he reached the floor to lie her gently on her back). We hadn't heard that lovely sound for quite some time. It really is the ultimate sound of happiness and contentment. I wish I could recreate it for you. Maybe I'll try to get some video of it.
PS. The pictures are from Grandkids' weekend at Mamaw and Papaw's house in November.
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